Sometimes just walking in and providing some good information gives you your power back. Simply having confidence in your personal knowledge about your disease changes the appointment. You can FIRE your doctor if they don't work for you.
"So, again, don’t ignore what conventional medicine has to offer. We do really well with acute conditions. If you have something that is unrecognized beyond chronic Lyme disease, an evaluation with a cardiologist can save your life. And sometimes the beta blockers and some of the drugs can prevent something catastrophic or ease your symptoms in the short-term."
"With that said, there are certainly times when you might need a primary care provider (PCP) or a specialist to address issues that aren’t necessarily caused by Lyme."
"Once you are actually a person impacted by the horror and disability lyme can create, you realize quickly how little help there is available to you. Doctors that deny to help people with a disease just because they don't know what to do is NOT an excuse. Solutions are only found by those that say "I'll try".
DEAR DOCTOR LETTER
CARDIOLOGIST LETTER
If your prefer the blog version on this website, simply search these titles.
GASTROENTEROLOGIST information to print
NEUROLOGIST Information (2 posts to help that appointment)
Articles on the brain, Lyme and related conditions like MS, ALS, Dementia and Parkinsons. The neurological effects and similarities in testing results etc
Brain and Neurological effects
DISMISSIVE DOCTORS post
APPOINTMENT PREPARATION for LYME LITERATE DOCTOR post
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