Rise Above Lyme Blog

POTS is one of the most overlooked parts of chronic illness, and it can be all-consuming when it isn't under control. 💜 ⠀ For me, Lyme and Babesia caused it. Once I learned how to manage it, I felt so much less fear around my own body. I'm sharing this 4-part series so you can recognize it, ask the right questions, and know there are things that may help. ⠀ 📌 In this series: 1. What is POTS? (it has its own diagnosis code now!) 2. Signs & symptoms, plus how it's diagnosed 3

I've used my PEMF mat for years. I decided to dig into the topic for helping POTS. However, none of the frequency charts mention POTS so I'm unsure what the best number is to use for it. "PEMF therapy works by generating electromagnetic fields that penetrate tissues and stimulate cellular activity. In the case of POTS, PEMF therapy may help regulate the autonomic nervous system, which is responsible for controlling heart rate, blood pressure, and other involuntary bodily func

CAUSES Lyme disease and Babesia caused POTS for me. https://www.riseabovelyme.com/post/most-common-symptoms "While researchers are still working to identify the root causes and pathology of POTS, there are several underlying diseases and conditions that are known to cause or be associated with POTS or POTS-LIKE symptoms in some patients. This is a partial list: -Amyloidosis -Autoimmune Diseases such as Autoimmune Autonomic Ganglionopathy, Sjogren's Syndrome, Lupus, Sarcoidosi

"POTS can be difficult to diagnose due to so many symptoms occurring in the body over time. Before diagnosis of POTS, various symptoms may lead patients to try many doctors. Patients with POTS may have symptoms for months to years before finally being diagnosed with the condition." A tilt table test is the gold standard of POTS diagnosis. The tilt table measures your heart rate and blood pressure as you change posture and position. Besides the tilt table, other testing may be

Solutions post: https://www.riseabovelyme.com/post/pots-possible-solutions POTS group by Rise Above https://www.facebook.com/share/WRJbZxsFNGsi1ZmU/?mibextid=A7sQZp SEE OUR CAUSES AND SYMPTOMS post here https://www.riseabovelyme.com/post/pots-causes-and-symptoms We have gathered multiple sources of information to get educated. Many things that can help are included. Knowledge is power. 2 photos in comments to understand signs and symptoms. "Successfully advocated for a uniq

I wanted to share more information on this topic. I have had hundreds of bad POTS issues/episodes that often led me to the ER or at least sent me into complete panic. For years it often felt like it was one of the diseases flaring as the symptoms can get confusing. I have mostly presented with the same symptoms which helped me determine what was going on. I usually get a racing heart, confusion, dizziness, and an odd hot and cold sensation. Anxiety always followed. BUT recent

We decided to provide some information on this subject due to my personal experience. I woke 2 hours late with low BP, high pulse, and feeling super weak and dizzy. Not my normal experience except for a heavy cycle. Most of us know our cycles have an effect on our symptoms but it also makes POTS symptoms worse. Oh, the joys of being a woman. https://www.ahajournals.org/doi/full/10.1161/HYPERTENSIONAHA.110.151787 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3413773 Related pos

I learned something this week from my primary which made so much sense to me and hopefully will help me and someone here. I get some scary low BP drops since I got Lyme, caused by POTS. It took years to figure out, with many failed medications. I eventually found solutions to keep my electrolytes balanced and my BP up to 100/60, and have mostly managed well for 2 years. It's a delicate balance when you have an intracellular hydration issue. So many variables in a day can affe

Here is my attempt to help you with your next cardiologist appointment. Now doctors don't always respect just any source but many may be open to reading from multiple sources so I have worked on breaking down which will be undeniable and they have to acknowledge it but I want to include all. This is to make sure they understand Lyme Carditis and one on POTS. I created a letter for you to use below. These are not meant to scare you, it is meant to educate your cardiologist if

(Postural orthostatic tachycardia syndrome) POTS can be very difficult to diagnose due to so many symptoms. This often leads patients to try many doctors. Sometimes it takes years before a doctor actually figures it out. It was a very frustrating experience. I was in the ER many times and even they didn't put it together. Thankfully awareness on this topic is becoming more known now. It used to consume me and effect how I lived each day. Even my last cardiologist didnt reco