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Rise Above Lyme Blog


LYME SONGS
These are songs either written about the disease, or simply relatable: https://m.youtube.com/watch?v=EKF6ghfcQic https://m.youtube.com/watch?v=KSsZMDL0s4w https://youtu.be/LjF9IqvXDjY https://youtu.be/uIbXvaE39wM https://m.youtube.com/watch?v=zEeQOerk9lA https://m.youtube.com/watch?v=0-rakAGTvvA https://m.youtube.com/watch?v=zUUtfU9I_ys https://m.youtube.com/watch?v=NsO5v7O7-GE https://m.youtube.com/watch?v=TL0hccepcWo https://m.youtube.com/watch?v=xCLN6JuXfpE&feature=you


MOST COMMON LYME SUPPLEMENTS / HERBALS
25% OFF ALL SUPPLEMENTS/HERBALS HERE: Us.fullscript.com/welcome/theriseabovelyme (We have education posts on each one mentioned within the group) "When it comes to natural treatments, supplements are often the easiest to access and the first remedy that people try out. Most supplements are available online or at natural health food stores and typically have a low risk of side effects." https://igenex.com/tick-talk/natural-remedies-for-lyme-disease "When seeking treatment for


THE LYME DIET
The common diet is: "NO SUGAR, NO DAIRY, NO GLUTEN." These articles explain why avoiding sugar, gluten and dairy are important (avoiding things like nightshades/lectins are common as well). https://www.globallymealliance.org/blog/lyme-disease-the-gut-microbiome-and-inflammation-the-dos-and-donts https://www.jillcarnahan.com/2024/06/12/fighting-fibromyalgia-the-surprising-benefits-of-a-gluten-free-diet "First of all, avoid refined sugars at all costs. Sugar is very immune supp


BAND 41
So band 41 comes up a lot so we decided to do a post with information about it. Band 41 is kinda famous in this Lyme world. Many of us have this and sometimes its the only one that pops up. My very first Lyme test ONLY showed 41. Of course, making me question and doubt the path I was pursuing. Nevertheless, I searched harder to see if Lyme was what was slowly bringing me to my knees healthwise. I retested 6 weeks later. I am sad for the many people that move on after seeing j


How To Decipher Lyme Bands
The following is a breakdown of the Western blot only. As co-infections will show their own: IgM is a sign of a current infection. IgG can be a sign of a current infection if symptomatic, or of a past exposure to or past infection by the organism. There are nine known Borrelia burgdorferi genus specie specific KDA Western Blot antibodies (bands): 18 23 30 31 34 37 39 83 and 93. Only one of these Borrelia burgdorferi genus specie specific bands is needed to confirm that there
LUMBROKINASE / BOLUOKE
You can 25% off here on supplements: Us.fullscript.com/welcome/theriseabovelyme (Email us to access 25% off name brand Boluoke!) Resources https://townsendletter.com/lumbrokinase-an-enzyme-for-more-than-just-circulatory-health-kwok "One of the advantages of Boluoke® (lumbrokinase) is that it does not interfere with the clotting cascade, but instead, works by reducing fibrinogen and fibrin. Boluoke® does not affect INR or aPTT, thus is compatible with Coumadin or heparin."...


L-THEANINE
I personally love this stuff, and it has been something I leaned on before I even knew I had lyme. It has also helped 2 people in my family. My lyme doctor said I can take as much as 600mg 3x a day. I always read 200mg was an effective dose, but I asked him recently because when I'm stressed, my nervous system needs help calming. We wanted to share info on this great supplement. 25% off top brands of L-theanine here: Us.fullscript.com/welcome/theriseabovelyme Resources...


LOW BODY TEMPERATURE AND FEVERS IN LYME AND CO
"People with Babesia are often quite chilled and can’t get warm and will have to take a hot shower or jump in a bathtub to warm up. The temperature de-regulation is again related to a dysfunctional autonomic nervous system. So, people either can’t get warm, or they get too hot." https://www.lymedisease.org/touchedbylyme-wayne-anderson "However, sometimes a low core body temperature is due to the build up of toxins in the blood that causes the blood to become thick and viscous


LOW BP, POTS, AND DYSAUTONOMIA
I learned something this week from my primary which made so much sense to me and hopefully will help me and someone here. I get some scary low BP drops since I got Lyme, caused by POTS. It took years to figure out, with many failed medications. I eventually found solutions to keep my electrolytes balanced and my BP up to 100/60, and have mostly managed well for 2 years. It's a delicate balance when you have an intracellular hydration issue. So many variables in a day can affe


L-ORNITHINE
You can get 25% off on L-ornithine here: Us.fullscript.com/welcome/theriseabovelyme "L-Ornithine - An amino acid that plays an important part in the formation of urea which is needed to remove ammonia from the body. It is recommended over both L-Arginine and L-Carnitine for removing ammonia from the brain because the brain lacks the Ornithine-related enzyme for neutralizing ammonia. When using L-Ornithine, one should start out slow and increase as the dosages become more tole
LIVER HEALTH and LYME
Lyme Disease and many co-infections can affect the liver Here are some ideas you may find helpful. Don't forgot to check out our post on detox. I love glutathione, sulforaphane and Pekana kit myself. Regularity is also key. Resources https://www.riseabovelyme.com/post/liver-support-solutions https://www.globallymealliance.org/blog/does-lyme-disease-affect-your-liver https://www.drhagmeyer.com/best-supplements-to-help-detox-and-cleanse-liver https://m.youtube.com/watch?v=26cot


LITHIUM AND LITHIUM OROTATE
"The supplement lithium orotate, however, contains much smaller quantities of lithium than the prescription form, generally ranging from 5mg to 10mg daily and in some cases, up to 20mg daily. Some clinicians are skeptical that such a low dosage can provide much support, but many clients have reported feeling benefits." https://www.amenclinics.com/blog/understanding-the-differences-between-lithium-and-lithium-orotate "On the other hand, when using lithium to alleviate the effe


LION'S MANE
You can buy Lion's mane at 25% off here. My doctor has me use SUPER LION'S MANE capsules. There is a 2oz tincture by Host defense for $29. Us.fullscript.com/welcome/theriseabovelyme I put the one my doctor has me take below: http://www.lymecompass.net/herbal-blog/lions-mane.html https://wildkingdomextracts.com/blogs/mushroom-education/the-brain-boosting-effects-of-lions-mane-mushroom https://drjockers.com/lions-mane/ https://www.healthline.com/nutrition/lions-mane-mushroom Ou


LEMON WATER
Keep in mind that although citrus is not high in histamine, they may trigger the production of histamines in some people. Explains herx recipe with lemon in detail: https://www.tiredoflyme.com/tired-of-lymes-top-3-methods-for-reducing-a-herxheimer-reaction.html https://health.clevelandclinic.org/7-reasons-to-start-your-day-with-lemon-water-infographic/ https://www.healthline.com/health/food-nutrition/benefits-of-lemon-water https://www.bbcgoodfood.com/howto/guide/health-benef


LDN (Low Dose Naltrexone)
Whether you're looking to learn about LDN (low dose naltrexone) used in treatment, convince or educate your doctor to prescribe it, or trying to find a doctor who prescribes it, I wanted to cover all of this in one post to help members in future. I believe in it and have used for 10 years now. It is used to help pain and inflammation as well as modulate the immune system. I've used it for many years. This drug is widely known in the medical community in high doses to come off


LOW DOSE IMMUNOTHERAPY (LDI)
We are not recommending or endorsing this because we simply haven't done it and don't have enough feedback or information. I plan to ask two separate Lyme doctors in the next month to get their current opinion on its use and success rate depending on where you are in your recovery. I will then come back to this post and add what I learn. If you have experience doing it, please share, including the costs that are involved. Low dose immunotherapy is a treatment that works by im


LAUGHTER
We wanted to do this subject because I felt inspired after speaking to my therapist last week about the subject. Humor and laughter have always been a BIG part of my life. I was raised being surrounded by it and I've raised my own children with lots of humor. When I have a funny experience and laugh hard, I feel so good afterwards. I love all kinds of shows to make me laugh. I have a couple definite favorites I will put in the comments. Please add some funny movies or shows y


LARCH ARABINOGALACTAN
"Recent human studies have demonstrated that dietary intervention with arabinogalactan from North American Larix species could increase resistance to infections. Larch arabinogalactan seems to positively influence NK cells, macrophage activities and pro-inflammatory cytokine production." https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4828828 "The major commercial sources of this long, densely branched, high-molecular-weight polysaccharide are North American larch trees. In cell


LACTOFERRIN
Feel free to share your experience using Lactoferrin with us! I was told if you get a response, it is often delayed- I believe by about 4 weeks. Maybe it needs to build up? I was put on the Ecological Formulas brand, which is seen below in the pictures. It is 25% off making it $45 for 60 capsules. Allergy Research charges $99 for 9, and is very similar in milligrams. Both options are 25% off but I'm sticking with Ecological as that is what I was told to take, and it is slight


KPU/HPU
Please comment below with any information or experience that you have on this topic. "KPU, also known as HPU, (Haemopyrroluria), is a condition where pyrrole, a key component of haem, (the red pigment in blood) is overproduced in the liver and bone marrow. Normally excess pyrrole is excreted in bile pigments via the stool. However, if there is an unusually high buildup of pyrrole, it is excreted via the urine." https://www.brainstormhealth.co.uk/2016/12/could-it-be-kpu/ "KPU
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