Here are some of my favorite sources to start understanding this complex disease when not treated early.
"Prominent Lyme-treating physician Dr. Richard Horowitz lists evidence regarding Borrelia’s ability to survive antibiotics. I recommend you save this answer in your files for future discussions with doctors and others."
"This in-depth look at the science describes current research in this subject, and weighs the evidence for and against continued bacterial replication."
"The studies below demonstrate the existence of persistent infection, giving validity to the terms “persistent” and “chronic. The studies below, many funded by Bay Area Lyme, demonstrate the existence of persistent infection, giving validity to the term persistent Lyme."
"A study by an international team of researchers has found persistent infection despite antibiotic therapy in patients with ongoing symptoms of Lyme disease. The study was published in the open access journal Healthcare (Basel)."
"Non-recognition of persistent infection is a central concern of the Lyme disease community. It is why we fought to have the TBDWG formed in the first place, and why we’ve continued to fight for adequate representation of chronic Lyme patients."
"An illustration of B. burgdorferi in blood. Researchers are investigating the effects of dead remnants of the bacteria in the brain long after antibiotic treatment."
"Monica Embers, PhD, director of the vector-borne disease research center at Tulane University School of Medicine, summarizes evidence that suggests that Lyme bacteria can survive long after standard treatment protocols in a new online medical education course."
"Our government denies persistent (chronic) Lyme and refuses to acknowledge and help those patients."
"People who have had Lyme disease know all too well that getting over the initial infection is not always the end of the battle, and people with long COVID are learning this as well. But what is long COVID, exactly? And what does it have to do with Lyme disease?"
"Harvard study identifies symptom clusters in Lyme patients with persistent symptoms after treatment."
"There are several theories about why symptoms might continue for months if not years. Some of the bacteria might be able to evade the immune system, bacterial residue might remain that trigger ongoing inflammation or a severe initial infection, delayed treatment or coinfections from the tick bite, such as babesiosis, might lead to an uncontrolled and ongoing overreaction by the patient’s immune system."
"The data show that living B. burgdorferi spirochetes were found in ticks that fed upon the primates and in multiple organs after treatment with 28 days of oral doxycycline. The results also indicated that the immune response to the bacteria varied widely in both treated and untreated subjects."
NEWLY DIAGNOSED CHRONIC LYME
Here are a few sources to empower you to fight back against certain dismissive doctors. I have 2 letters you can use so far.
Disclaimer: Rise Above Lyme makes no claims about any possible benefit of using any product mentioned within this site. Always consult with your doctor before adding anything. The information shared is based on personal experience, years of accumulated researched resources from Lyme Literate doctors and polls conducted within Lyme groups from actual patient experience using these solution ideas.