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LYME LITERATE DOCTORS

Jessica Devine
Oct 4, 2022
3 min read

Updated: Oct 15

We can help you find a properly trained Lyme literate doctor with a good reputation for helping patients heal.


A quick-view graphic with the key points is at the bottom of this post.


WHAT IS A LYME LITERATE DOCTOR?

An LLMD (Lyme literate medical doctor) or LLND (Lyme literate naturopathic doctor) is a doctor who has taken a special interest in treating Lyme and co-infections, often after going through it themselves or with a family member. They come from all kinds of specialties. One popular LLMD was an OB/GYN, another a psychiatrist. Nurses, chiropractors and other practitioners can be Lyme literate too.


An LLND is who saved my life and put my daughter in remission. I personally love naturopathic doctors.


BUYER BEWARE

LLMDs, LLNDs and Lyme literate practitioners are NOT all the same. ILADS membership alone doesn't prove they completed ILADS training. Make sure they have COMPLETED the training before you book.


Facebook groups share lots of info, but not all of it is good or accurate. Even a well-meaning person can steer you toward a doctor who isn't good at treating Lyme, which costs you time and money. Personal experiences help, but also look at who the practitioner trained with and which protocols they use.


QUESTIONS TO ASK BEFORE YOU SCHEDULE

- Who did you train with, and did you complete ILADS training?

- What treatment methods do you use?

- If you use antibiotics, do you use more than one at a time?

- Which labs do you use?


If you're interested in antibiotic treatment for chronic Lyme, read "How Can I Get Better?" by Dr. Richard Horowitz so you understand what a good protocol looks like.

He also released a new book in 2026.


No one doctor is right for every patient. Even "the best" won't be best for everyone. If you've been with a practitioner 12 to 15 months and you aren't any better, something is being missed. Don't be afraid to try someone new.


NEED A DOCTOR?

Email us for a vetted name at theriseabovelyme@gmail.com, or join our group and post that you need a Lyme literate doctor. We'll help you.


Get ready for your appointment:


Other places to search:


ILADS provider search (start here):

Before you tap Search, be sure to pick the box that says "Limit results to only professionals who've completed ILADS Physician Training Program." That way you only see doctors who finished the training.


LymeDisease​.​org doctor referral:


Global Lyme Alliance doctor referral:


Can't afford a Lyme literate doctor? Global Lyme Alliance shares ideas here:


WHY NOT AN INFECTIOUS DISEASE DOCTOR?

Lyme falls under infectious disease. When I first got my results almost 10 years ago, I reached out to 25 infectious disease doctors, plus referrals from my neurologist and cardiologist. Not one would see me. They all said some version of "We can't treat Lyme," even though I had positive labs for Lyme, Rocky Mountain spotted fever, Babesia, Bartonella and Ehrlichia, all in their area of medicine.


Countless patients share the same story of infectious disease doctors who won't treat, dismiss symptoms or admit they don't know how. Very few across the country know how to treat these complicated infections. Not knowing what to do is NOT an excuse. Cures are found by those who say "I'll try."

There are only a few lyme literate infectious disease doctors.

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Disclaimer: Rise Above Lyme makes no claims about any possible benefit of using any product mentioned within this site. Always consult with your doctor before adding anything. The information shared is based on personal experience, years of accumulated researched resources from Lyme Literate doctors and polls conducted within Lyme groups from actual patient experience using these solution ideas.

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