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Rise Above Lyme Blog


IVERMECTIN
I am in the midst of finding and gathering information on this topic since it comes up often. Please email us with any resources you have on the topic. I have used and it was prescribed by my doctor to a compounding pharmacy. "Evaluation of the inhibitory effect of ivermectin on the growth of Babesia and Theileria parasites in vitro and in vivo" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6625054/ https://www.sciencedirect.com/topics/medicine-and-dentistry/ivermectin "


LYSINE
Lysine is an extremely common mention, especially in the EBV group. I have put a few related blogs at the bottom. I want to always thank Toni H. for always being so helpful to the community (and me) on this important topic. "Lysine is directly antiviral and that includes EBV and other herpes viruses. In fact, lysine is one of the most effective antiviral supplements for herpes simplex, including cold sores, canker sores, and genital herpes (Walsh et al., 1983). I’ve seen it


EDS - EHLERS DANLOS SYNDROME
We have been asked many times to cover this topic. We hope this helps with some resources to understand. "Hypermobility and mast cell activation syndrome connection?" https://drtaniadempsey.com/ehlers-danlos-syndrome-hypermobility-and-mast-cell-activation-syndrome-the-connection/? fbclid=IwAR0ipjjCxOaLiSVRzpcC8NfRMaFqxKeZr78jL2idi3KoSdMtEsXQriFPDnI "One of the most striking examples of how Lyme disease co-infections can wreak havoc on the extracellular matrix and connective t


LYME DISEASE AND CO-INFECTION TESTING
Please email me with any new resources you learn to help me keep this up to date! I wanted to start by having you look at these two: https://www.riseabovelyme.com/post/most-common-symptoms https://www.riseabovelyme.com/post/lyme-questionnaire It is best to have a Lyme literate doctor order the tests they choose is right for you. https://www.riseabovelyme.com/post/lyme-literate-doctors LIST OF RELATED BLOGS FOR FULL UNDERSTANDING: CLINICAL DIAGNOSIS https://www.riseabovelyme.c


MEDICARE TESTING COVERAGE
For those with Medicare, they cover IGENEX, GALAXY and REAL TIME LABS. For Igenex, have an MD sign the order. Unfortunately, Medicare does not cover ND orders. I found it is best to get my Lyme literate doctor to fill out the orders and then take them to my primary to fill out the rest of the paperwork. In order for Medicare to cover Real Time labs it must be ordered by a practitioner. You can definitely self order Real Time labs in most states (not all unfortunately) but


HOW TO USE THE GROUP AND WEBSITE
Use this to search! Some things are missing that you may find under blog section instead, below: https://www.riseabovelyme.com/directory Or Click below and type any topic in the search bar: https://www.riseabovelyme.com/blog


HELP NEEDED ON PROJECT
PLEASE help me with my next project to help members here and beyond. I ask you to email me your LYME FRIENDLY and LYME LITERATE specialists. That means they are: Helpful Knowledgeable about Lyme Compassionate NOT DISMISSIVE Please include state and what type of specialist. I have an amazing list so far for all states but am looking to add and make the lists available. SEND ME: CARDIOLOGISTS IMMUNOLOGISTS NEUROLOGISTS GASTROENTEROLOGISTS INFECTIOUS DISEASE DOCTORS (ILADS tra


MY PERSONAL LYME INTERVIEWS
LYMEDISEASE.ORG https://www.lymedisease.org/jessica-devine-rise-above-lyme/ https://www.lymedisease.org/boy-mom-chronic-lyme-disease/ https://www.lymedisease.org/educating-central-calif-lyme/ https://www.facebook.com/355776547850926/posts/3779189788842901/ BAY AREA LYME FOUNDATION https://www.bayarealyme.org/blog/bay-area-lyme-ambassador-shares-her-story/ GLOBAL LYME ALLIANCE https://www.globallymealliance.org/blog/jessica-devines-journey-with-lyme-disease KSEE 24


FULLSCRIPT AND CATALOG SEARCH
One really awesome feature if you are sensitive to certain fillers or need to find a certain combination of ingredients is Full script's filter feature. How to filter: https://support.fullscript.com/articles/searching-the-patient-catalog/ I took a few pictures to show you. 25% OFF ON EVERYTHING...ALL TOP BRANDS are on here Click below. Enter email. Create a password. Use catalog search bar to find what you need. *The discount is automatically applied. No code needed. Permane


MAGNESIUM AND MENSTRUAL CRAMPS
Someone close to me tested this for bad cramps and it absolutely works! Great for PMS, etc. Magnesium Glycinate: https://helloclue.com/articles/cycle-a-z/magnesium-and-the-menstrual-cycle#:~:text=Magnesium%20may%20help%20to%20prevent,pain%20(1%2C8) https://www.riseabovelyme.com/post/different-forms-of-magnesium-and-some-of-their-benefits I personally love magnesium combination products, so I gain the different benefits using the different forms. I put a couple options below t
INFECTIOUS DISEASE DOCTOR
Lyme disease is in the Infectious Disease doctor category. When I first received all of my results 10 years ago, I tried frantically to reach out to 25 DIFFERENT Infectious Disease doctors. My neurologist and cardiologist ALSO sent referrals because I was CDC positive for Lyme. NONE of them would let me make an appointment. I mean every single one of them said either one of two things... "Sorry, we can't/aren't allowed to treat Lyme." "We can't see you in our office. Yes


DISABILITY ATTORNEYS WHO HAVE WON FOR LYME PATIENTS
For many years I worked very hard to gather attorney names from patients who won their cases across all the groups I run. Since I did not speak to each attorney with permission to distribute publicly, I prefer to distribute names by email instead. So, if you would like that information, please email me below. APPLYING FOR DISABILITY WITH LYME: https://www.riseabovelyme.com/post/applying-for-disability-with-lyme-2 EMAIL ME HERE: THERISEABOVELYME@GMAIL.COM


MAGNESIUM AND CONNECTION TO VITAMIN D
If you are struggling with a deficiency, MAGNESIUM is needed for optimal Vitamin D Levels: https://www.healthline.com/health-news/how-magnesium-can-help-your-vitamin-d-levels#Vitamin-D,-magnesiumdeficiencies https://pubmed.ncbi.nlm.nih.gov/28471760/ https://www.sciencedaily.com/releases/2018/12/181214093837.htm https://www.sciencedaily.com/releases/2018/02/180226122548.htm Here is a list of great options at a discount: https://us.fullscript.com/protocols/theriseabovelyme-mag


TOPICAL PAIN RELIEF
I learned about this from my Lyme literate doctor, and found it especially helpful for neck, back and spine pain. It is an amazing magnesium lotion for pain. They have also generously done giveaways in my groups, so I appreciate the company for that as well. ANCIENT MINERALS MAGNESIUM MSM LOTION: Use code RISEABOVE to save on their site. https://www.riseabovelyme.com/ways-to-save Recently I received a lot of great feedback on an alternative product called 767. I bought it


VITAMIN C for MCAS - HISTAMINE ISSUES
Because many sources of Vitamin C can actually raise your histamine levels, you want to avoid certain forms of Vitamin C. You also need to pick according to your sensitivity to oxalates. I happen to deal with both, so I am doing this project to help guide others and for my myself. Trying to read through long articles to get to the main recommendations takes time and I'm here to save you time and get to the beef of it all. Top recommendations by top resources on histamine issu


LYME QUESTIONNAIRE
This questionnaire is a great starting point if you suspect you may have Lyme. It is one of the reasons I got tested in the first place. I also feel it is a good thing to do and bring the results into your first Lyme Literate doctor appointment. Go under the Symptoms tab and click on the tab to download the form: https://mailchi.mp/8e5ccb1a9297/lyme-questionnaire https://medicaldetective.substack.com/p/how-will-i-know-if-i-have-lyme-disease "The results support the use of the


LYME DISEASE IN CALIFORNIA
Here are articles where science has proven Lyme is in California (it's in every state but these are California focused). I had multiple doctors tell me it didn't exist in California when I was seeking answers. Sadly, many doctors in many states attempt to dismiss patients with saying this. They simply need to be educated. https://www.lymedisease.org/new-rickettsial-pathogen-calif/?fbclid=IwY2xjawFL7SpleHRuA2FlbQIxMQABHdMswV8PrOs4SaPJQbz0hP-hc3fllveXAgBrKycv_BMO2aXRJJ5k3xIAjQ


MOOD TONIC
I was SUPER EXCITED to learn about this MOOD TONIC by VITANICA. A product called Sunny Moods had always been my go-to but hated the size of pills plus they added some ingredients I could no longer use. I could never find a comparable formula. So, my LLND sent this when I asked for tincture. I've used this brand many times. Great ingredients, lemon balm, passionflower and rhodiola. 25% off here, including this brand: https://us.fullscript.com/welcome/theriseabovelyme


MEDITATION AUDIO TO HELP ANXIETY and SLEEP
Do you have a hard time falling asleep? When I was at my worst in this disease, I would have intense anxiety going to bed because I was filled with fear due to symptoms when I would lay down. I was shaky and in extreme pain so I couldn't shut my brain off and get to sleep. I needed to sleep to heal and escape. So, this exact audio is what finally helped me go into a trance and I would go into a deep sleep. There are many and she is amazing but this one in particular helped
ROTATING PROBIOTICS
“If you want to get a continuous beneficial effect from your probiotics, you should change probiotics every three months or with the seasons,” says Paulina Lee, RD, LD of Savvy Stummy. “If you were to take the same probiotic all year round, it may lose its effectiveness and even lend itself to gut dysbiosis by creating an imbalance of the very diversity you were trying to create.” By heeding her three-month rotating schedule, Lee says you’ll have a better chance to maintain h
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